Questions and Answers
(Q&A), Our Way
Insightful, Conversational, Encouraging, Long-winded, and from Experience Q&A Index How do I Use this Website?
CFSupport <->
CFS Support <-> CFS
and FMS
Support
Q.
I don't have much energy or concentration.
I am easily frustrated. I can't remember where I find stuff on the web. Can you help me navigate this website better, faster, at all? A.
Yes! Since we know
first hand about the cognitive problems, limited energy and limited
upright at a computer time...
we've been adding easier ways to find things on a certain page -
more Tables of Contents for the individual web page you are looking at
- more links for you to jump directly where you want to go next - a search this site page - making our pages more likely to pop up in Google and Yahoo searches Also, we've been adding more and easier ways to navigate around the site -
a site map that lists
our pages, divided by major area
- expanding the drop down menu on the home page to include more items, sorted alphabetically, and now with some cross referencing - a new site index, housed on this page - a Table of all the Newsletter Tables of Contents Every page has at least "Home" "Email Us" "Subscribe" "Search" "Sitemap" at the top and bottom. Don't know how to get to where you want to go? From any page: Choose "Home" to use
the left side major area links;
Choose "Home" to use more extensive drop down menu, then CLICK; Choose "Sitemap" and see the overview of the website by major area; Choose "Search" to scan this site for keywords; or Choose "Subscribe" to go sign in at our Yahoo site and read archived emails. Search will always be
somewhat incomplete
because search engines either don't have all of our pages or the latest
changes of our pages. Therefore, browsing is very
important. Choosing "Email Us" to ask us is another
option.
Below, we've added an alphabetical index list similar to the one in the Home page's drop down menu. This one has more cross referencing and explanation. Have you not noticed the drop down menu at the Home page? You are not alone! Also, when you use it, be sure to click the button next to the drop down menu to go to the selected section. Several people, including us. forget that, too. Repeatedly! More step saving tips: Use bookmark of the pages you
check or need to refer to most frequently.
Use your browser's status bar - look at web addresses under links before you click. (In Safari - the switch for statud bar is under the View menu.) Overview of Sections Most websites have sections of their own content such as newsletters, articles, events. Our content sections, we're we write about stuff or list it with some detail, are Q&A, Our Way Newsletters aka Group Newsletters Events - Upcoming DC Area, Global, Past EGG - Elly's Gratitude Group Descriptions, Resources, Summaries Clinical Trials/Studies Books & Videos, Amazon Store About Us Meetings: Guidelines, Directions Speakers - Upcoming Speakers - Prior: Contact Info, Links to articles by and about Practitioners What is CFS? What is FM? Also, many websites have a
"Links" page. We probably have more links to other sites than original
content! We direct you to leave our website often to go see great
information already elsewhere on the web, trusting you'll come back
sometime. If we do have content for a subject that matches one of our
links categories, we link to it so you can see what we offer in
combination to other authors commenting on the same subject.
We've organized our many links into a few major topics, each with multiple sections: Resources,
References, and
Links by Subject - 8 pages, 51 subjects so far
Other Groups - A directory of CFS, FM, OI, and related Associations & Groups In the Media - a listing of news articles, interviews, tv, and radio Webrings & Friends What changes the most? What do I check when I visit? The sections that get upgraded the most are "In the Media" as news is happening quite frequently now with the awareness campaigns, new research findings and enrollments, and more human interest stories; "Events" as speakers are scheduled; and "Books & Videos" as new items appear almost monthly. The "Practitioners List" gets lots of little changes on the fly as we get tips about people to add and remove. We suggest to look at a certain specialty when you begin to have interest in it, copy and paste just the section you are most interested in to a document or email for printing, make notes on the print out as you learn about insurance options and ask around about the practitioners, and then check back as your decision time approaches to see if we made changes. In 1st Qtr 2007, its the "Q&A, Our Way" section undergoing the most expansion. We are reviving and editing some of the wisdom from earlier emails and meeting summaries and putting it into new content pages. Check the Q&A Index every couple of weeks to see if a new page is there. Here is where we will try to pile our collected suggestions for explaining what's wrong and what helps. "Group Newsletters" get written sporadically. The items in them are usually repeats from our CFSupport E-mails. These have been averaging every other month. PDFs of a Print Newsletter for meetings have been showing up twice a year. Group E-mails sometimes alert people to major web changes. Consider signing up for our CFSupport leader announcements only at Yahoo Groups. There is a "Subscribe" link on every page with "Home" "Email Us" "Search" and "Sitemap" If you have a specific question about the website, please Email Us. Notes about Links, Printing, Design, Organization...
We help you Search Elsewhere! In order to keep our site up to date, we developed ways to more efficiently search the web for finding news items for specific conditions, finding support groups, looking up events. We've built those search phrases into links and put them in the sections relevent to and/or we give the sources to check for updates. These are powerful tools when feeling brave enough to click because... You can get up to date info
even if we don't update a section for awhile.
You can more easily find something we wouldn't necessarily include. and You can personalize the search if the results are too narrow or too broad for you by adding a location or changing the search terms. Look up at the url, the web address, or look at what is in search engine entry box. See if you can adjust it more for your needs. Example, to check today's
news, I open the home page. Then I click on "In
the Media" on the left. Them I click what is currently the
5th choice, "Search the
web for News: As it happens, By the Week/Month, Archived."
That takes me to a bunch of search options, but I most often pick the
first one. I've copied it here if you'd like to try it:
Another
power search we provide is for finding research articles. These are
found under Resources> Research Publications:
We like sending you to other sites, giving you tools to discover what you are seeking. We trust you'll come back if you need or want to, soon or months from now, maybe in a few years. To find your way back, use a bookmark or two or search the web for "nova cfs (or fms) support group." Perhaps instead, our site is just a one time stepping stone along your path. Either way, thanks for stopping by. We wish you your best. Jumping Back and Forth from here to our Yahoo CFSupport Site Like
this website is called CFSupport, our Yahoo group is called CFSupport,
too. It can be a little confusing. Yahoo owns Geocities and so
it
can get even more confusing when trying to describe the two websites.
We're used to confusion, so we can get through this.
Every page has at least 2 links to jump to our Yahoo group. The link is called "Subscribe" to direct new members wishing to join. It is also just a convenient link for established members. Just click to go to the Yahoo Groups CFSupport Home Page and sign in. There, search and read archived emails, look at photos, check the rideshare database, vote in our polls, and/or use the handy DC area meeting calendar. To get back to this Geocities CFSupport site, use the "Related Link" on the home page at Yahoo Groups CFSupport, look in the Links section and choose the first link after the folders, or use a bookmark you may have previously set up. General Accessibility Tips Enlarging/Shrinking
Text, Speech to Text, Accessibility
Some people need bigger or smaller lettering than we publish in and our pages appear in different sizes. We try to use good spacing and colors, and make things as simple and readable as possible, but learning some adjustments for you specific needs may make for a more enjoyable web visit. Apple Mac OS X On Macs, which our leadership swears by for ease of use and intuitiveness, the way to make text look bigger is to hold the Command/Apple Key down and press the "+/=" key. Repeating that makes the text bigger still. Pressing Command "-/_" (minus/hyphen) makes the text smaller. It still works regardless of the Shift key being held down or CAPS lock on. For text to speech options, so you can close your eyes and let your computer read to you and more options, visit Apple Macintosh Accessiblity Options - Literary Access Online MS Windows If you want to change the size of the text while surfing the web & you are using Netscape Navigator, all you need to do is press CTRL + ]. Maybe this or a similar thing works in other programs. For other accessiblity features, see Microsoft Windows Accessibility Options - Literary Access Online Guide for Aging Computer Users,Ten Tips for the Awkward Age of Computing Baby boomers can use Microsoft Windows XP to customize their computers and counter the effects of age-related difficulties with vision, hearing, and dexterity. Enlarging Text in Microsoft® Internet Explorer Alphabetical Index List of Almost Everything on Site CFSupport: About CFSupport and The NoVA CFS & FMS Support Group Advocacy/Awareness Day Awareness Items for Sale Anesthesia Art Gallery by CFSupport Members & Friends Art, Poetry, & Film Associations & Groups Attorneys List Blogs Books & Videos Overview : 4 Ways to Browse Complementary and Alternative
Medicine,
Integrative Medicine Treatment
Carers & Caregivers - (friends & family) Case Definitions - CFS Case Definitions - FM CFS, FM Themed Items for Sale CFSupport at Yahoo! Groups - our Email list Chats, Forums & Penpals Children, Parents, School Chronic Fatigue Syndrome - What is it? Chronic Fatigue Syndrome - Official Case Definitions Chronic Fatigue Syndrome - Prevalence Chronic Pain Clinical Trials Clumsiness - Aprons and Bibs for Clumsiness - What's on the Web Conferences and Tapes from Conferences Coping, Living with DC Area Support Groups for CFS, FM, OI DC Area Support Groups - Other chronic illnesses Disability Information Doctors List Dysautonomia - Orthostatic Intolerance Dysautonomia - MVPS/D - Northern VA Support Group Dysautonomia - MVPS/D - Maryland Bay Area Support EGG - Elly's Gratitude Group ∞ Email Message archives - Must log in at Yahoo & be a member Email sign up: Yahoo! Emergency Services Employee Issues En Español, other languages Events Events
Spring 2007 Mind-Body Medicine
ExerciseEvents Jan 20 - Fuller on LTD Events Mar 17 - Gilbert/Bains Events Apr 05 - Friedberg Events Global Events May 14-15 CFIDSLobbyDays Fibromyalgia Syndrome - What is it? Fibromyalgia Syndrome - Official Definitions Fibromyalgia - Prevalence Film, Poetry, & Art Financial Resources, References & Links Forums, Chats & Penpals Friend/Family- Resources by and for people who care Government Information Gratefulness Gratitude Group (EGG) ∞ Gratitude Resources at EGG: Books, Music, Articles, Movies, Journals Groups & Associations Guestbook of Gratitude - About Guestbook of Gratitude - Sign Guestbook of Gratitude - View Health Care Provider Links Health Practitioners List - DC Area, Full List of Speciaties, and Main Page Health Practitioners List - Beyond DC Health Products Health Product Companies Help Around the House Holidays, Coping with them & Family Gatherings Housing Humor, Funny Stuff Inspirational Resources Inspirational: Recovery Stories Interstitial Cystitis Irritable Bowel Kids, Parents, School Laboratories Lawyers List Legal Assistance Lobby Days, CFIDS Long Term Disability Lyme Disease Major Sites Maryland Bay Area MVPS/Dysautonomia, OI & CFS/FM Support MCS - Multiple Chemical Sensitivity Medications & Supplement Information Media Coverage Medical IDs & Wallet Cards Meetings Memory, Cognitive Impairment, Thinking Problems Misc. More Resources Money Saving Tips Mitral Valve Prolapse Syndrome / Dysautonomia (MVPS/D) - Symptoms National Organizations Newly Diagnosed News - In the Media Newsletters - Ours Newsletters - Others' NMH - Neurally Mediated Hypotension - Orthostatic Intolerance Orthostatic Intolerance Orthostatic Intolerance Support Group ♥ Other Groups Overlapping Syndromes Pain, Chronic Parents of Young Ones, School Parents of Adults with it and other Carers Penpals, Chats & Forums Personal Care, Personal Assistants, Organizers, Cleaning Help Photo Gallery Pharmacies - Resources Pharmacy - Practitioners, Drug Programs Practitioners List - Doctors, Lawyers, with links to relevant articles Practitioners - Main
Poetry,
Art, & FilmPractitioners - Brain, Heart, Systems Practitioners - Pain, Rehab Practitioners - Eye Care Practitioners - More: Dental, Nutrition Practitioners - Mental Health Practitioners - Beyond the DC Area Practitioners - Eastern Practitioners - Legal Practitioners - Energy Practitioners - Pet Post War, Gulf War Illness POTS - Postural Orthostatic Tachycardia Syndrome - Orthostatic Intolerance Prevalence - CFS Prevalence - FMS Q&A, Our Way: Full Index Q&A:
Anesthesia
Read Me - About the
Practitioners ListQ&A: Aprons & Bibs; Clumsiness Q&A: HouseHelp Q&A: How to use this site <-- The page where you are looking. Q&A: Music Q&A: OI-why? Q&A: Reading Q&A: Spouses Q&A: Support Hose Q&A: Symptoms, whaddaya mean? Q&A: I look good? Relationships Research Publications Research - Clinical Trials Resources, References, & Links by Subject, Main Page Resources,
Refs, Links II
Rideshare
to Meetings Database - Must log in at Yahoo & be a member
Resources - Connecting Resources - Coping Resources - Financial Resources - Inspiration Resources - Shopping Resources - Syndromes School, Youth, Parents Search this Site with Google and Yahoo Search Engines Sex, Relationships Sign Up for Our Emails Site Map Shopping Links Sleep Disorders Social Security Disability Income Information Speakers - Upcoming Speakers - Prior: Contact Info, Links for many of our dozens of guests. Speaker -
Janine Blackman, MD/PhD - Family Practice
SpiritualitySpeaker - Fred Friedberg, PhD - Psychologist Speaker - Chuck Fuller, Esq - LTD Attorney Speaker - Jonathan Gilbert, NCCAOM- Herbalist, Chinese Medicine Speaker - Sam Makoul,CNC - Nutritionist, Counselor Speaker - Mitch Lambros, Esq - SSDI Attorney Speaker - Alan Pocinki, MD - Internist Spouse has it Strategies, Stories, Stress Stressing and Destressing Studies - Treatments Supplements - Ordering Support Groups: About Starting Them, Running Them Support Groups & Associations CFS/FM Groups by USA States
CFS/FM Groups beyond USA by Country CFS/FM Groups that cross borders CFS/FM Groups - DC Area (includes OI/Dysautonomia groups) CFS/FM Groups - Mid Atlantic DC Area Other Illness Groups Directories of Support Groups Google for more Support Groups Large Organization Addresses, Telephone Numbers, etc Tapes, video, audio of conferences Tests Traveling Treatment Information Trials, Clinical Studies Vacationing Videos/DVDs/Audio Vision Services, Practitioners, Articles about Problems with Vision Vitamin Orders Vulvodynia, Vulvar Vestibulitis Webrings & Friends What are CFS/ME/FMS? Working while ill Yahoo! Group CFSupport Youth, Parents, School |