Physically, lupus has made me feel very old. I have no strength, energy, nor endurance most of the time. Emotionally, this is an up-hill fight for me. The thing that bother me the most is that no one around me seems to have any understanding of what it is like to live with this disease... sometimes not even my family.
Emotionally, this is an up-hill fight for me. The thing that bother me the most is that no one around me seems to have any understanding of what it is like to live with this disease... sometimes not even my family.
I feel the professional care I have received has been satisfactory, and the physicians I have consulted are well-educated in Lupus. I also have the support of my family members.
E-mail Vickie Here.
I am now medically retired from teaching, but find much fulfillment through my voluntary work as webmistress, forum monitor, and help line contact for the St. Thomas' Lupus Trust web site. I am also retraining for a different career.
I feel fortunate that I have received satisfactory professional care, as I realize many have not. My treating physician is internationally-known for his research in Lupus, so he is very well-educated on the disease. I also have the support of my family which is extremely helpful.
My primary symptoms include fatigue; rashes; inflmmation of joints, muscles, ligaments; Cognitive dynsfunction; peripheral neuropathy; Pleurisy; Pericarditis; Eye disorders; and "Lupus Lung".
E-mail Rosalind Here.
... The respondants on this page have chosen only to share their symptoms with us, which is perfectly understandable. This survey is designed for us to communicate only that which are comfortable with revealing. Expressing ourselves isn't easy for everyone. Thank you for participating!
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