Three Short Lupus Stories
Response Contents Page Four Here

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Bernie's Story

Physically, lupus has made me feel very old. I have no strength, energy, nor endurance most of the time.

Emotionally, this is an up-hill fight for me. The thing that bother me the most is that no one around me seems to have any understanding of what it is like to live with this disease... sometimes not even my family.

~ Bernie ~

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Vickie's Story

I experience the standard symptoms of SLE, including skin rashes, achy joints, pleurisy, anemia, and migraine headaches.

I feel the professional care I have received has been satisfactory, and the physicians I have consulted are well-educated in Lupus. I also have the support of my family members.

~ Vickie McGinty ~
LOUISVILLE, KY.

E-mail Vickie
vickie_mcgintyfspc.com
Here.

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Rosalind's Story

Physically, lupus affects me a great deal. I experience pleurisy, pericarditis, inflammatory bowel disease, inflammation of muscles & ligamants, Hughes' Syndrome (Lupus Anticoagulant Syndrome), and CNS (Central Nervous System) involvement.

I am now medically retired from teaching, but find much fulfillment through my voluntary work as webmistress, forum monitor, and help line contact for the St. Thomas' Lupus Trust web site. I am also retraining for a different career.

I feel fortunate that I have received satisfactory professional care, as I realize many have not. My treating physician is internationally-known for his research in Lupus, so he is very well-educated on the disease. I also have the support of my family which is extremely helpful.

My primary symptoms include fatigue; rashes; inflmmation of joints, muscles, ligaments; Cognitive dynsfunction; peripheral neuropathy; Pleurisy; Pericarditis; Eye disorders; and "Lupus Lung".

~ Rosalind Share ~
United Kingdom

E-mail Rosalind
roz@infotech.demon.co.uk
Here.

Please take time to visit the U.K. Lupus site which Rosalind maintains.
St. Thomas' Lupus Trust
http://www.infotech.demon.co.uk

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... The respondants on this page have chosen only to share their symptoms with us, which is perfectly understandable. This survey is designed for us to communicate only that which are comfortable with revealing. Expressing ourselves isn't easy for everyone. Thank you for participating!

~ Issy

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CLICK ON the "Response Banner" at the top of this page to return to Lupus Stories Chapter Four

~ Or, you may go directly to the
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