LUPUS STORIES ~ CHAPTER TWO ~

LUPUS STORIES ~ Chapter Two ~

PRIVACY STATEMENT DISCLAIMER

LUPUS LINKS CHOOSE ANOTHER ROOM

Lupus Stories ~ Chapter Two ~

If you are still without a diagnosis, confused and frustrated by the medical run-around, please read through the pages of Issy's LUPUS INFORMATION CENTER. There you will find answers to many of your questions and probably even some you've never considered. Contained within these pages are symptoms, statistics, little-known facts, and common mis-conceptions. There may even be something there for those of you who have already been diagnosed! I believe you will find it well worth your time. If you would like to print these pages, The Lupus Information Center is now available in Print-Friendly Pages! Also available is a new section on Social Security Disability Benefits. Be sure to check it out before you apply!

I will post your responses to the Lupus Survey as they are received! Read your post and those of others. Make friends, learn more about your disease, share emotions, and know that all-important sense of belonging. Please share your story with us! PLEASE NOTE!
I have recently discovered that I have not been receiving all of the responses to this form!! I always reply to each submission within 2-3 days. If you do not receive an e-mail from me within that time period after submitting your response, please
e-mail { IssyMissy } with your story. I don't want to leave anyone out! Thank you and I regret this inconvenience.

If you haven't yet, please be sure to see what you can do to help support
H.R. 762
Funding for Lupus Care and Research

If you are interested, you may read my own personal lupus story here.

I'm Really Not Crazy!

7) ~ Wendy ~
"...If I only had diabetes, for example, people would be supportive, but I have too many "complaints" to be taken seriously. If I had cancer or even HIV they would be at my side, but with my diagnosis I just can't win. I want understanding, not pity. I am feeling very alone in this. I am tired of crying and being afraid and alone..."
Wendy expresses what many of us can relate to so well.

Read

Here

8) ~ Randy ~
"The constant joint pain just wears me down so much! Worse still is the unbelieveable, incapacitating fatigue which has career-threatening potential for me as a working professional."

Read

Here

9) ~ Janet ~
"...Am down to 10 mg. of Predisone every other day and trying to discontinue it completely."

Read

Here

10) ~ Kathy ~
"I soon required afternoon naps or at least, bed-rest everyday. I found myself requiring assistance with simple chores I had always done on my own...."

Read

Here

11) ~ Les ~
"I realize this Lupus thing can bring you down but I have been blessed with so much, I can't let it get to me. I have the most wonderful, patient and kindest husband in the world. I don't know what I would do without him."

Read

Here

12) ~ Louorna ~
"...I can venture outside only when every square inch of my body is covered with Class II Medical Device clothing, including masks, gloves, etc. And then, I can only remain outside for 15 to 60 minutes, depending upon the source of the UVs."

Read

Here

Lupus Stories
Chapter One

Lupus Stories
Chapter Three

~ OR ~
Navigate to the various pages of Lupus Stories, as well as to any other room of the house, by using the ROOMS listing below.

If you haven't yet, you may enter

The Lupus Survey Page
~~ OR ~~

You may choose a room:
[ Foyer ] [ Sign Guest Book ] [ View Guest Book ]
[ Living Room] [ Kitchen] [ Holiday Suite ]
[ Den] [ Sarah's Photo Album ] [ Wood Shop Designs ]
[ Bathroom ] [ Bedroom ] [ Personal Lupus Story ] [ Closet ] [ Top Shelf ]
[ Library] [ Patio ] [ Crafting Shed] [ Background Boutique ]
[ Lupus Survey ] [ Lupus Stories 1 ] [ Lupus Stories 2 ]
[ Lupus Stories 3 ] [ Lupus Stories 4 ] [ Lupus Stories 5 ]
[ Lupus Stories 6 ] [ Lupus Stories 7 ] [ Lupus Stories 8 ]
[ Multiple Sclerosis Links ] [ MS Information Center ] [ Win An Award ]

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This site is owned and maintained by Gayla Pledger. All stories contained within these pages are the © copyright of the author and used here with the express consent of each individual.
Please note that neither I nor the individuals sharing their lupus stories, are physicians. This area of IssyMissy's House is provided strictly for the purpose of sharing our experiences and feelings with one another as a means of support and validation. The opinions expressed here are strictly those of the person who gave them and should be treated as such. Lupus is a disease as unique as each individual and only your doctor can know what medications and treatments are best for you. Follow the directions of your own personal physician and always consult your doctor before changing or discontinuing any treatments or medications.
"IssyMissy" and "Miss Issy" are the trademarks of Gayla Pledger.
( © copyright - 1998,1999 ) ALL RIGHTS RESERVED.

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