 
If you are still without a diagnosis, confused and frustrated by the medical run-around, please read through the pages of Issy's LUPUS INFORMATION CENTER. There you will find answers to many of your questions and probably even some you've never considered. Contained within these pages are symptoms, statistics, little-known facts, and common mis-conceptions. There may even be something there for those of you who have already been diagnosed! I believe you will find it well worth your time. If you would like to print these pages, The Lupus Information Center is now available in Print-Friendly Pages! Also available is a new section on Social Security Disability Benefits. Be sure to check it out before you apply!
Please share your story with us!
I have recently discovered that I have not been receiving all of the responses to this form!! I always reply to each submission within 2-3 days. If you do not receive an e-mail from me within that time period after submitting your response, please e-mail { IssyMissy } with your story. I don't want to leave anyone out! Thank you and I regret this inconvenience.
If you are interested, you may read my own personal lupus story here.
1) ~ Shawna ~
"...I just refused to go to the doctor, no matter how sick I was. This caused a lot of family friction because my parents were worried. Yet I just couldn't face being told again that there was nothing wrong with me when I knew there was."
 Here Shawna's story remains posted here as a memorial and a tribute to one of our dear friends. Though Lupus took her young life, she never let it have her spirit. We who knew and loved her will miss her so much. Shawna was preceded to heaven by her mother, Annette, who also died from lupus.
2) ~ Annette ~
Annette was Shawna's mother, and though Annette is no longer with us, Shawna has shared her mom's story. It is an experience not only of SLE, but one of love, joy, and the absolute power of mother-love and family devotion.
 Here
3) ~ MARCIA ~
"... My Internist said he could do nothing for me but recommend psycholgical testing and stress conceling....
 Here
4) ~ Karin ~
"...The most difficult things for me to deal with are the misperceptions and attitudes of other people.
Before I developed massive discoid lesions I did not appear to be ill. Family and co-workers accused me of being hypochondriac, lazy, whiny and yes, even crazy!"
 Here
5) ~ Joni ~
 Here
6) ~ LARA ~
"...There are down days, but I lean toward laughter and my Lord and Savior to keep me "up." I still sometimes over-exert myself when I get excited about a task. My family is good about reminding me to rest and if I ignore them they are good to NOT say I told you so when I crash..."
 Here
or view the contents of:  Lupus Stories Chapter Two
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Know someone who might benefit from reading our stories, or might like to share their own Lupus story with us? Send This Page!
       
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 This site is owned and maintained by Gayla Pledger. All stories contained within these pages are the © copyright of the author and used here with the express consent of each individual. Please note that neither I nor the individuals sharing their lupus stories, are physicians. This area of IssyMissy's House is provided strictly for the purpose of sharing our experiences and feelings with one another as a means of support and validation. The opinions expressed here are strictly those of the person who gave them and should be treated as such. Lupus is a disease as unique as each individual and only your doctor can know what medications and treatments are best for you. Follow the directions of your own personal physician and always consult your doctor before changing or discontinuing any treatments or medications. ( © copyright - 1998,1999 ) ALL RIGHTS RESERVED.
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