I was diagnosed about 18 months ago with Discoid Lupus, and then developed systemic involvements (SLE). I have been in a "flare" since that time. However, some days are better than others. My primary symptoms include fatigue, swelling of my hands, feet, face, and stomach. I have Sjogren's Syndrome (Dry eyes, mouth, mucous membranes), and Raynaud's Phenomenon (vasculitis) of the hands. I suffer permanent loss of vision in my left eye due to lupus complications, and, of course, weight gain from the Prednisone. Having Lupus has limited all my physical activities. Basically, it has changed my life completely. At times I feel as though I am of really no use to my family or friends. I have to depend on my husband for many, many everyday things that I used to be able to do myself. One of my doctor's favorite saying is, "Lupus can do what it wants, when it wants, where it wants." . . . How very, very true. I feel that I have good professional health care and that my physician is well-educated in treating Lupus. I'm grateful for my husband and the family support that I have with my illness. I also thank God for His love for me. My faith in God, His love for me, and all the support of family, friends, and my doctor are what gives me the strength to get through each day. The one thing I would like all my family to know is that I am not crazy!! This illness is real and my body has gone through so many changes, with all the aches, pains, and chronic fatigue.
Having Lupus has limited all my physical activities. Basically, it has changed my life completely. At times I feel as though I am of really no use to my family or friends. I have to depend on my husband for many, many everyday things that I used to be able to do myself.
One of my doctor's favorite saying is, "Lupus can do what it wants, when it wants, where it wants." . . . How very, very true. I feel that I have good professional health care and that my physician is well-educated in treating Lupus. I'm grateful for my husband and the family support that I have with my illness. I also thank God for His love for me. My faith in God, His love for me, and all the support of family, friends, and my doctor are what gives me the strength to get through each day. The one thing I would like all my family to know is that I am not crazy!! This illness is real and my body has gone through so many changes, with all the aches, pains, and chronic fatigue.
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