I have just found out about my "condition" in the last six or seven months. I am still very new at dealing with this. I have to say that I am relieved to know that I am not just lazy. For the last three or four years, I struggled to live from day to day, thinking I must be the laziest person that has ever lived. In some ways, it was a relief to know that there is a reason I feel the way I do. My primary symptoms are: FATIGUE, FATIGUE, FATIGUE, the "butterfly rash", migraines, weight gain, and weight loss. Depression. I have not felt that my health care has really been satisfactory, but the physician I have now seems to be well-educated on Lupus.
I don't feel that I have the support of my family in my illness. I know they just don't understand and of course, don't want to accept that what I have isn't going away. I'm still not comfortable with talking about my illness with anyone. I don't think that I am dealing with it emotionally very well. I feel like my husband, who is very supportive in some aspects, is still in denial. He is hoping that it isn't lupus. Sometimes that attitude is so irritating to me and difficult for me to deal with his denial and my illness at the same time.
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