My life has changed in ways I can't begin to describe. Emotionally, it's very depressing. Physically, I'm exhausted all the time. I also experience Anemia, chest pain, photosensitivity, mouth and nose sores, achy joints, headaches, body aches, skin rashes, pleurisy, shortness of breath, and chronic urinary tract infections. I also have weird allergic reactions at inconvenient times, which is very embarrassing, and my hair is falling out. I am too tired and achy to exercise. I do not feel that my health care has been satisfactory, nor do I beleive the physicians I have consulted are very well-educated in SLE. I do however, have the support of my family, which is a blessing. To cope with this disease, I try to stay as active as I can, and take it day by day. The one thing I really wish my family could understand is that I feel shitty all the time.
I do not feel that my health care has been satisfactory, nor do I beleive the physicians I have consulted are very well-educated in SLE. I do however, have the support of my family, which is a blessing. To cope with this disease, I try to stay as active as I can, and take it day by day. The one thing I really wish my family could understand is that I feel shitty all the time.
Jewels' Story
I have had lupus it seems like forever. My symptoms include joint pain and stiffness, fatigue, and kidney involvement (lupus nephritis). Having a chronic illness can be difficult to accept at times, but I am learning to live with it. The best remedy I've found is to laugh alot!!!! I occupy myself by playing on my puter and my web pages. I have also gone back to school. Somedays I'm down, but I'm not out! My health care has been satisfactory, yet I do not feel the physicians I have consulted have really been very knowledgable in lupus. I have the support of my family, which is a blessing many do not have. The thoughts I would like to express to my family are that when I seem down and upset, I hope I don't upset them. I really do appreciate them and love them and want to thank them for everything.
My health care has been satisfactory, yet I do not feel the physicians I have consulted have really been very knowledgable in lupus. I have the support of my family, which is a blessing many do not have. The thoughts I would like to express to my family are that when I seem down and upset, I hope I don't upset them. I really do appreciate them and love them and want to thank them for everything.
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