I have just been diagnosed with Lupus. (September 1999) I am not sure that I have really had any affects as of yet, except being extremely tired. I do have Raynaud's (either Disease, or Phenomenon), that is only in my hands right now. I know that I am very angry about having this disease. I guess I was incorrect in stating that I haven't had any symptoms. The truth is, I try very hard to believe that I do not have lupus. The doctor has told me that I have some type of "Connective Tissue Disease." I do have a positive ANA, but it is borderline normal/high. I have been going through these tests for 5 years now. I've started having a butterfly rash when exposed to the sun very much. The rash, coupled with the fatigue is what the doctor is going by.
I guess I was incorrect in stating that I haven't had any symptoms. The truth is, I try very hard to believe that I do not have lupus. The doctor has told me that I have some type of "Connective Tissue Disease." I do have a positive ANA, but it is borderline normal/high. I have been going through these tests for 5 years now. I've started having a butterfly rash when exposed to the sun very much. The rash, coupled with the fatigue is what the doctor is going by.
I am a very active person, and intend to stay that way. I have my aches and pains, but try to forget about them. I am going to get a second opinion from another physician. I recently had a really bad attack of "something" and couldn't get out of bed for 48 hours. When I did get up for a while, I passed out and they had a really hard time bringing me around. That was really scarey. I am not coping with this at all. I am just extremely angry about it. I have my family's support, but I think they are too concerned. I don't want pity. I just want to be treated as I have always been treated. No special treatment and I wish everyone would quit telling me to rest and take it easy. Just let me be myself.
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