I was diagnosed with Systemic Lupus (SLE) in 1989, just as I was returning to college to obtain my nursing degree. My kidneys have been affected, but are now functioning 100%... Thank God! I am currently in remission and only take Prednisone for occassional flare-ups, maybe three times a year. I am 36 years old, married and unable to have children. The cytoxan I had to take for my kidneys made me sterile. I currently work three days a week, which is a life-saver for me. I believe if I didn't have my job, I would be sick all the time. I just can't stand to sit home day and nite. I am followed by a Rheumatologist from the world-renowned "Mayo Clinic" in Rochester, Minnesota. I feel fortunate, as far as lupus goes. It is under control and I feel good most of the time. I can keep working and that is very important to me at this point in my life. I hope it continues that way. At this point, my major symptoms are moderate pain, lethargy, skin rashes, alopecia (hair loss), and migraines. I take an anti-depressant called Paxil, which helps me considerably. The one thing I would most like to express is that no one in my family really understands how I feel, and most importantly, I would like for my employer to be better informed on Lupus and its effects.
I am currently in remission and only take Prednisone for occassional flare-ups, maybe three times a year. I am 36 years old, married and unable to have children. The cytoxan I had to take for my kidneys made me sterile. I currently work three days a week, which is a life-saver for me. I believe if I didn't have my job, I would be sick all the time. I just can't stand to sit home day and nite.
I am followed by a Rheumatologist from the world-renowned "Mayo Clinic" in Rochester, Minnesota. I feel fortunate, as far as lupus goes. It is under control and I feel good most of the time. I can keep working and that is very important to me at this point in my life. I hope it continues that way. At this point, my major symptoms are moderate pain, lethargy, skin rashes, alopecia (hair loss), and migraines. I take an anti-depressant called Paxil, which helps me considerably. The one thing I would most like to express is that no one in my family really understands how I feel, and most importantly, I would like for my employer to be better informed on Lupus and its effects.
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