I used to be an Assistant Branch Manager of a bank, but finally had to quit working full time. I am now working for the man who used to own the banks. He is really like a father to me and one of the few people who understands my disease. When he sold the banks, he asked me to work for him, keeping his and his wife's personal books, and we've done odd jobs on the side also. It has been a life-saver for me. when I am sick, I get to stay at home, and that has helped me so much.

I was once a very active person. I went all the time, always doing something, but this disease has completely changed my life. It has been very had for my friends and family to accept, especially my best friend. I really don't think she understands that I just can't do the things I used to do or keep up with her anymore. I feel so guilty sometimes. I feel like I should be doing more, but I just can't. I worry that people think I am giving into this disease, but I'm not.

I'm not very good at telling my story. I have read all the others and it has help me so much to know there are people out there just like me who feel the same as I do, physically and emotionally. I would love to hear from other people but don't know even about the computer yet to talk back and forth with people. I hope others will email me. I would love to hear from other people who have this horrible disease .