If you are still without a diagnosis, confused and frustrated by the medical run-around, please read through the pages of Issy's LUPUS INFORMATION CENTER. There you will find answers to many of your questions and probably even some you've never considered. Contained within these pages are symptoms, statistics, little-known facts, and common mis-conceptions. There may even be something there for those of you who have already been diagnosed! I believe you will find it well worth your time. The Lupus Information Center is now available in Print Friendly Pages. A new section has also been added on Social Security Disability Benefits.
Be sure to check it out before you apply!

~~ THANK YOU ~~
For Taking The Time
To Answer A Few Questions...

With your permission, your responses will be posted in the Book of Lupus Stories that we may all know one another better. Please understand that due to the amount of time and web space involved in posting your story, I must ask all participants to write at least 2 - 3 paragraphs depicting your experiences with lupus and/or the process of getting diagnosed. Two or three sentences can't make a story and cannot justify the use of an entire web page. Your experiences are vital information and the key to helping someone else who suffers.

IMPORTANT!!
As you answer each question,
DON'T hit the Enter key --
use the Tab key instead.
(or your mouse)

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What is your name?

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Where do you live?

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Your E-Mail address:

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What is your URL?:
(web site address)

http://

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Please include your e-mail address so I can contact you when your story is posted. If you prefer not to have your
e-mail address provided on your story page, simply choose that option from the selections below. Thank you.

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If you have Lupus, please describe how it affects you, physically and/or emotionally. Share the details you are comfortable with, but please write at least 2 paragraphs on your experiences, as these pages are called "stories."
(Your response is not limited to the size of the answer box below, as it will expand to accommodate the length of your entry.)

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Please answer the following questions you did not address in your previous response:

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How long have you had a lupus diagnosis?

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What are your primary physical symptoms?

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What "secondary conditions" do you have?

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What medications do you take for your lupus symptoms and are they effective?

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How long were you ill before being diagnosed?

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What symptoms prompted your physician to test for lupus?

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Were you ever treated like a hypochondriac by family and/or physicians? If so, what was your experience?

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How do you cope with the emotional aspects of having a chronic illness?

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What, if anything, is the one message you would most like to convey to your friends and family about the way you feel?

Please check the boxes which apply:

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The care and attention I have received by physicians has been:

SATISFACTORY

UNSATISFACTORY

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The physicians I have consulted seem to be well-educated on Lupus:

YES

NO

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My friends and family are supportive and understanding of my illness:

YES

NO

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Please check your answers:

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I have read and understand the Privacy Statement.

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May I post your responses to the Survey at this site?

Yes      No

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You may include my e-mail address on my story page.

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Please do not include my e-mail address on my story page.

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For information on receiving your FREE MedAdvantage Card through the Lupus Foundation of America, please follow the link below: MedAdvantage

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If you haven't yet, be sure to see what you
can do to help support
H.R. 762
"Funding for Lupus Care and Research"

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With the amount of information and fun contained in this site, you may want to bookmark Issy's House and return at your convenience to complete your tour.

If you know someone that might
like to share their story with us,
CLICK HERE TO SEND THIS PAGE!

Once you have submitted your responses,
click your browser's BACK button
to return to this page and then you may view

The Book of Personal Lupus Stories
~~ OR ~~
You may choose a room:
(Before clicking on a link, make sure the WATERMARK is out of the way)

The Foyer	Sign GuestBook	View GuestBook	Site Map	Hall Entrance	Lounge {Game Room}
Living Room	The Den	Sarah's Journal	Sarah's Photos	RobDog's Retreat	The Attic
Holiday Suite	The Kitchen	Breakfast Nook	My Lupus Story	The Bathroom	Laundry Room
The Bedroom	The Closet	The Top Shelf	Library Entrance	Tutorials	Entertainment Center
The Patio	Crafting Shed	WoodShop Designs	Issy's Boutique	Issy's Diner	ImageQuest
Lupus Survey	Lupus Stories 1	Lupus Stories 2	Lupus Stories 3	Lupus Stories 4	Lupus Stories 5
Multiple Sclerosis Information Center	Multiple Sclerosis Links	HotSprings Community Center	Win An AWARD	My AWARDS	Clip Art/ Background Sets

When you are finished, please click here:

If you would like to clear this form,
please click here:

If your browser does not support FORMS, please mail your personal Lupus story directly to me at Argentinum@aol.com

! ATTENTION !
I have recently discovered that I have not been receiving all of the responses to this form!! I always e-mail each person who submits their story within 2-3 days. If you do not get an e-mail from me within that time period after submitting your response, please e-mail me with your story! I don't want to leave anyone out!
Thanks, and I regret this inconvenience.

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